Pulmonary medium vessel vasculitis in an 11 year old boy: Hughes Stovin...
AbstractWe present the case of an 11-year-old boy presenting with haemoptysis, dyspnoea and weight loss as a manifestation of isolated pulmonary vasculitis, leading to pulmonary hypertension. He also...
View Article23 Fysiotherapeutische diagnostiek en behandeling van juveniele idiopathische...
Samenvatting» Juveniele idiopathische artritis (JIA), ofwel jeugdreuma, is een auto-immuunziekte die bij kinderen onder de 16 jaar leidt tot gewrichtsontstekingen met pijn, zwelling en stijfheid...
View ArticleAssessment of disease activity by patients with juvenile idiopathic arthritis...
AbstractBackgroundSelf assessment of arthritis is important for recognition of disease activity and early initiation of therapy. Proper interpretation of physical symptoms is necessary for this. The...
View ArticleDesign and acceptance of Rheumates@Work, a combined internet-based and in...
AbstractBackgroundJuvenile idiopathic arthritis (JIA) is a chronic rheumatic disease. Patients suffer daily discomforts such as pain, fatigue, stiffness, and mood disturbances. Their exercise capacity...
View ArticlePhysical activity in children with Juvenile Idiopathic Arthritis compared to...
AbstractBackgroundTo compare physical activity (PA) in children with juvenile idiopathic arthritis (JIA) with controls and to analyse the effect of disease specific factors on PA in children with JIA...
View ArticleFatigue in patients with Juvenile Idiopathic Arthritis: relationship to...
AbstractBackgroundFatigue is common in patients with JIA and affects daily life negatively. We assessed the presence and severity of fatigue in patients with JIA, including factors presumed associated...
View ArticleDutch juvenile idiopathic arthritis patients, carers and clinicians create a...
AbstractBackgroundResearch on Juvenile Idiopathic Arthritis (JIA) should support patients, caregivers/parents (carers) and clinicians to make important decisions in the consulting room and eventually...
View ArticlePharmacological conditioning for juvenile idiopathic arthritis: a potential...
AbstractBackgroundMethotrexate (MTX) therapy has proven to be a successful and safe treatment for Juvenile Idiopathic Arthritis (JIA). Despite the high efficacy rates of MTX, treatment outcomes are...
View ArticleRole of FDG-PET/CT in children with fever of unknown origin
AbstractPurposeTo determine the role of 18F-fluoro-2-deoxy-D-glucose positron emission tomography (FDG-PET)/computed tomography (CT) in children with fever of unknown origin (FUO).MethodsThis...
View ArticleDutch patients, caregivers and healthcare professionals generate first...
AbstractBackgroundInvolving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a...
View ArticleCapillary microscopy is a potential screening method for connective tissue...
AbstractBackgroundNailfold capillary microscopy (NCM) is a cornerstone in the diagnosis of Systemic Sclerosis (SSc) in adulthood. Although Raynaud’s phenomenon (RP) is very common in childhood, studies...
View ArticleFactors associated with care- and health-related quality of life of...
AbstractObjectiveThis study investigates the relationship of child, caregiver, and caring context measurements with the care-related quality of life (CRQoL) and health-related quality of life (HRQoL)...
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